A bereaved, bereavement user researcher

How I, a trauma informed bereavement researcher, am using research insights and my self-created psychological protection plan to support myself during an unexpected heartbreaking bereavement.

This will consist of a number of short posts, talking about the range of experiences and impacts of this bereavement. 

Trigger warning: death, and many more
If you are recently bereaved, or have experienced a heartbreaking bereavement, this content may not be for you, take care and make sure you have support in place before continuing.

Bit of background 

I’m Anna a trauma informed user researcher. I am a passionate advocate for users. I am one of those people that really enjoy their jobs, I am inquisitive and strive for detailed in-depth understanding across what ever topics or user groups I am researching. Knowing I am continuously exposed to the trauma of others, but with a determination to make them heard, using what I learn from research to make positive changes for as many people as possible, especially those that are the most vulnerable. 

I have experienced a range of bereavements throughout my life, friends, family and colleagues, both in and out of this country, expected and unexpected. And supported others in both personally and professionally through bereavements. 

So when I decided 8 years ago to work on a bereavement discovery team, establishing the needs for a wide range of bereaved people. Involving large scale primary research I knew what I was letting myself in for. What I wasn’t expecting ,was to experience the death of my father-in-law and my aunt within a matter of months of each other. I took the hard decision, to to step away from this team and switched team with another researcher. A decision in hindsight, which was 100% the right decision for me and my well-being.

During the covid pandemic when a role came up in the Bereavement and Care support and service design team, I figuratively bit their hand off (obviously through a teams call because of lock down).  A second chance in an area I wanted to make a positive impact, voicing users lived experiences and needs.

I was successful and moved into the space, being there ever since, with a developing role, enabling me to establish the support structure. I created the psychological protection plan in my own time, initally for my own support but as I talked about it and shared it wider it took off.  Using my own experience in the area and that of my researchers, other professions in my and other organisations willing to talk to me about the impact of researching bereavement, observing research and being exposed to research from in-depth information with videos of lived experiences to high level non-emotive reports. 

I created the psychological protection plan in my own time, to support myself moving into the space, from my own experience, training and support structure I established across differing organisations.

I started talking about the plan and sharing it with others that took interest, wanting additional support than the organisational offering, a structure that they could make their own and use how they wanted too. Iterating the plan as I gathered more feedback, turning to active feedback, reaching out to a wide range of professions exposed to bereavement research across a range of organisations.

So that takes us up to 16:30 on a Sunday in June 2024 when things changes.

This plan was suppose to support me being exposed to triggers and vicarious trauma I did not see myself using it for my own bereavement.

Posted: 28 June 2024

Anna is smiling, she has light brown hair, pale skin, wears dark rimmed ray ban style reading glasses, and has a lip ring.

Planned does not mean prepared

A bit tired, playing with my son, I got a call from my mum, I answered nearly straight away, she cried out ‘Anna, get here now!’.

A call I knew would come one day but not this day, we all thought including him that this could happen in 5 years at the soonest, but not now, not at the age of 76. 

I knew what to do, telling my wife that something had happened to dad, she knew by my face what I meant,  she quickly distracted our son after I gave him a kiss on the head, while I grabbing my bag, keys and was gone. 

I didn’t know what I was going to walk into but had subconsciously been prepping myself for this moment for a long while. I didn’t think to prepare for what my ADHD brain would think in the 4 minutes it took me to get there and unlock their front door. I didn’t think to prepare and could never have conceived the sight that met me or the mental and physical impact of that.

Planned doesn’t mean prepared in part of the 8 design principals I created through the research we and others have done about bereavement. Never has that statement been so true not just in that moment but throughout the rest that followed, and when it stops being true, I will tell you about it.

I was not prepared, I was not prepared to be the last smile, the last light in his eyes and I was not prepared to feel so helpless, all the while keeping it together, giving information to paramedics when they arrived, making my mum comfortable, comforting dad and more without a second thought (ADHD crisis control kicked in well).

The paramedic did a glucose test for those who do not know this involved a small cut to his finger. It wouldn’t stop bleeding I grabbed a plaster, saw one of my sons, a crocodile with a black  mask over their eyes. I teased him as I usually would that I wouldn’t tell my son, that he stole his plaster. That was the last smile, the last light in his eyes, the last expression of love from him I would ever experience.

By the time he was at the hospital he was gone, the body lasted longer but the thrombotic stroke had taken my dad away from me. And I was not prepared.

Posted: 29 June 2024

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